The socioeconomic impact of inherited retinal dystrophies (IRDs) in Canada and the US

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The socioeconomic impact of inherited retinal dystrophies (IRDs) in Canada and the US

Eyeing the cost

Retina International commissioned a report from Deloitte Access Economic to raise awareness of the prevalence of 14 inherited retinal dystrophies and their associated socioeconomic impact on individuals, government and society.

Inherited Retinal Dystrophies (IRDs) are one of the leading causes of visual impairment and there is currently no cure or effective treatment. We need to #ChangeTheFocus.

Key takeaways

  • It is estimated that there are over 184,000 cases of IRDs in the US, and over 20,000 in Canada
  • Rod-cone dystrophy and Retinitis Pigmentosa are the most common forms of IRDs in both the US and Canada
  • The economic cost of IRDs is estimated at over $5.0 billion in the US and over $0.6 billion in Canada
  • However, by far the biggest cost is the impact on individuals in the form of lost wellbeing and quality of life, estimated at over $8.4 billion in the US and over $1.1 billion in Canada.

Published: October 2020

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